End-of-life preparation in a new country: A grounded theory study on African migrants in Australia
Tracks
Chancellor 6
CALD
Palliative care
| Wednesday, November 13, 2024 |
| 3:00 PM - 3:15 PM |
Speaker
Mrs Gertrude Phiri
PhD Candidate
Edith Cowan University
End-of-life preparation in a new country: A grounded theory study on African migrants in Australia
Abstract
Preparing for end-of-life in a new country: A grounded theory study on African migrants living in Australia
Authors: Gertrude Phiri1, Joyce Muge-Sugutt1, Davina Porock1
Background: Planning for end-of-life is essential for ensuring individual care end-of-life preferences are achieved. Migrants from culturally and linguistically diverse (CaLD) backgrounds continue to lag. Previous studies identified barriers to end-of-life care by CaLD migrants however, no investigations have been undertaken to explore why barriers continue.
Aim: To explore perceptions of migrants from Malawi, Zambia, and Zimbabwe living in Australia about their preparation for end-of-life.
Methods: Using Charmaz's constructivist grounded theory approach, two face-to-face in-depth interviews, two to four weeks apart, using semi-structured, open-ended questions were conducted for each of the 14 participants. Participants were male and female, aged 45 years and over. Interviews were audio recorded and transcribed verbatim. Data collection and analysis were undertaken simultaneously using coding and constant comparative techniques.
Findings: Six concepts emerged (1) Remodelling self (2) Disintegrating family dynamics; (3) Resetting the life button; (4) Shuttling back and forth; (5) Finding equilibrium; and (6) Pursuing the horizon, culminating in the Dynamic Process of Toing and Froing (DPTF).
Conclusion: Barriers to care continue to exist for migrants of CaLD background because of the DPTF which needs to be understood by the healthcare professionals and the migrants.
Gertrude Phiri
PhD Candidate
School of Nursing and Midwifery
Edith Cowan University
270 Joondalup Drive
Joondalup WA 6027
Tel: +61 419 385 162
Email: gphiri0@our.ecu.edu.au
Authors: Gertrude Phiri1, Joyce Muge-Sugutt1, Davina Porock1
Background: Planning for end-of-life is essential for ensuring individual care end-of-life preferences are achieved. Migrants from culturally and linguistically diverse (CaLD) backgrounds continue to lag. Previous studies identified barriers to end-of-life care by CaLD migrants however, no investigations have been undertaken to explore why barriers continue.
Aim: To explore perceptions of migrants from Malawi, Zambia, and Zimbabwe living in Australia about their preparation for end-of-life.
Methods: Using Charmaz's constructivist grounded theory approach, two face-to-face in-depth interviews, two to four weeks apart, using semi-structured, open-ended questions were conducted for each of the 14 participants. Participants were male and female, aged 45 years and over. Interviews were audio recorded and transcribed verbatim. Data collection and analysis were undertaken simultaneously using coding and constant comparative techniques.
Findings: Six concepts emerged (1) Remodelling self (2) Disintegrating family dynamics; (3) Resetting the life button; (4) Shuttling back and forth; (5) Finding equilibrium; and (6) Pursuing the horizon, culminating in the Dynamic Process of Toing and Froing (DPTF).
Conclusion: Barriers to care continue to exist for migrants of CaLD background because of the DPTF which needs to be understood by the healthcare professionals and the migrants.
Gertrude Phiri
PhD Candidate
School of Nursing and Midwifery
Edith Cowan University
270 Joondalup Drive
Joondalup WA 6027
Tel: +61 419 385 162
Email: gphiri0@our.ecu.edu.au
Biography
Gertrude Phiri trained as a Registered Nurse in Zambia where she worked for 18 years before migrating to Australia. While in Zambia, she worked in various clinical settings before moving into the care of terminally ill patients in their homes. She also managed a hospice dedicated to providing respite for families. In Australia, she works in aged care as a senior nurse, mentoring staff in chronic disease management, palliative care, and end-of-life care. Her area of interest is palliative and end-of-life care for migrants of CaLD background. Now as a PhD candidate, her area of study is on migrants preparing for end-of-life in a new country.
Session Chair
Angel Lee
Research Fellow
Monash University
