Medication management resources for people living with dementia – priorities from a modified Delphi study
Tracks
Federation Ballroom / Plenary
Best practice
Community
Dementia
Medications
Residential
| Wednesday, November 13, 2024 |
| 2:15 PM - 2:30 PM |
Speaker
Dr Jacqueline Wesson
Senior Lecturer
University Of Sydney
Medication management resources for people living with dementia – priorities from a modified Delphi study
Abstract
Background
Medication-related harm is a preventable contributor to hospitalisation for people living with dementia. Information resources enabling them and their carers to participate in medication-related decisions are lacking, and practical strategies are needed.
This study will determine prioritised information for inclusion in co-designed medication management resources (domains and statements regarding content).
Method
Domains and statements were informed by a scoping review and focus group study with stakeholders. An online survey technique using purposive sampling will establish consensus (rounds 1-2). Participants rate importance of statements using a 9-point Likert scale, and according to pre-defined cut-points for consensus (≥ 78 % statements rated ≥7 and coefficient of quartile variation < 5%), these will be modified, deleted, or new statements added. Round 3 will comprise prioritisation of statements.
Results
Round 1 (n=23; response rate 82.1%) included people living with dementia (n=5), carers (n=5), and health care professionals (n=13). All domains were endorsed, including general question prompts, information about decision-making, guidance in different languages, supports available and addressing meidcation management complexities.. Consensus was high: 5 statements (10.2%) were deleted, 25 statements (51.0%) retained, 19 (38.8%) re-worded and 22 new statements added. Round 2 is underway, followed by a prioritisation round. Final results will be presented.
Conclusion
The voices of stakeholders will derive priorities informing the development of novel medication management resources, which will then undergo user-testing. Meeting the information needs of people living with dementia and their carers is important, supporting their right to participate actively in medication management and prevent unnecessary medication-related harm.
Medication-related harm is a preventable contributor to hospitalisation for people living with dementia. Information resources enabling them and their carers to participate in medication-related decisions are lacking, and practical strategies are needed.
This study will determine prioritised information for inclusion in co-designed medication management resources (domains and statements regarding content).
Method
Domains and statements were informed by a scoping review and focus group study with stakeholders. An online survey technique using purposive sampling will establish consensus (rounds 1-2). Participants rate importance of statements using a 9-point Likert scale, and according to pre-defined cut-points for consensus (≥ 78 % statements rated ≥7 and coefficient of quartile variation < 5%), these will be modified, deleted, or new statements added. Round 3 will comprise prioritisation of statements.
Results
Round 1 (n=23; response rate 82.1%) included people living with dementia (n=5), carers (n=5), and health care professionals (n=13). All domains were endorsed, including general question prompts, information about decision-making, guidance in different languages, supports available and addressing meidcation management complexities.. Consensus was high: 5 statements (10.2%) were deleted, 25 statements (51.0%) retained, 19 (38.8%) re-worded and 22 new statements added. Round 2 is underway, followed by a prioritisation round. Final results will be presented.
Conclusion
The voices of stakeholders will derive priorities informing the development of novel medication management resources, which will then undergo user-testing. Meeting the information needs of people living with dementia and their carers is important, supporting their right to participate actively in medication management and prevent unnecessary medication-related harm.
Biography
Jacki is an occupational therapist, with expertise in functional cognition, performance-based IADL assessment in mild cognitive impairment and dementia, and non-pharmacological behaviour support for people living with dementia across the continuum of ability.
She has more than 20 years of clinical experience in health settings, including memory clinic and older people’s mental health, working in hospitals, community, and residential aged care, and in policy.
Jacki’s research career started with clinically-based investigations, collaboration on the iFOCIS fall prevention RCT which led to an NHMRC trial, and then a PhD investigating assessment of functional cognition. Her role as a dementia consultant has developed her interest into researching and strengthening residential aged care practices, especially behaviour support.
Jacki is a senior lecturer in occupational therapy and early career researcher at University of Sydney. Current funded projects include behaviour support for people living with dementia in residential care, evaluating functional cognition screening in older people living with subtle functional change, and as part of a small ECR team, developing medication management resources for people living with dementia and their carers.
Session Chair
Anita Goh
Principal Research Fellow
National Ageing Research Institute
