Creating e-DiVA – a virtual assistant platform for dementia family carers in the Asia-Pacific region
Tracks
Federation Ballroom / Plenary
CALD
Dementia
Education and Training
Informal caregivers
Mental Health
Technology
Wednesday, November 13, 2024 |
11:00 AM - 11:15 AM |
Speaker
Dr Upasana Baruah
Research Fellow
National Ageing Research Institute
Creating e-DiVA – a virtual assistant platform for dementia family carers in the Asia-Pacific region
Abstract
The iSupport for Dementia program developed by the World Health Organization (WHO) was designed to equip carers with knowledge, skills and capabilities in the care of family members living with dementia at home. This study addresses the gaps in the program including need for improved user friendliness and real-time problem-solving functionalities. The aim of the current paper is to describe the development of a web-based application titled “empowering Dementia Carers with an iSupport Virtual Assistant (e-DiVA)”, tailored for dementia carers in Australia, Indonesia, New Zealand and Vietnam.
The study adhered to the UK Medical Research Council's guidance for development and evaluation of complex interventions, employing a co-design methodology involving carers in the development of e-DiVA. Key stages of this co-design process encompassed translating the standard iSupport program into local languages ensuring cultural relevance, adapting content according to WHO's iSupport adaptation framework, conducting qualitative research through focus groups, iteratively developing the e-DiVA app based on carer feedback and member-checking with dementia carers and professionals.
The collaborative efforts culminated in creation of the e-DiVA app, which delivers tailored interventions aligned with carer needs. Accessible across diverse devices, the web-based app offers text or voice-command search options yielding outcomes in text, picture, or video formats with detailed instructions. Additional features include integrated links to health and social care services, online peer support and a diary function for users. This initiative signifies a substantial stride in bolstering support for dementia carers in the Asia-Pacific region, holding promise for improving their caring experiences and outcomes.
The study adhered to the UK Medical Research Council's guidance for development and evaluation of complex interventions, employing a co-design methodology involving carers in the development of e-DiVA. Key stages of this co-design process encompassed translating the standard iSupport program into local languages ensuring cultural relevance, adapting content according to WHO's iSupport adaptation framework, conducting qualitative research through focus groups, iteratively developing the e-DiVA app based on carer feedback and member-checking with dementia carers and professionals.
The collaborative efforts culminated in creation of the e-DiVA app, which delivers tailored interventions aligned with carer needs. Accessible across diverse devices, the web-based app offers text or voice-command search options yielding outcomes in text, picture, or video formats with detailed instructions. Additional features include integrated links to health and social care services, online peer support and a diary function for users. This initiative signifies a substantial stride in bolstering support for dementia carers in the Asia-Pacific region, holding promise for improving their caring experiences and outcomes.
Biography
Dr Upasana Baruah is a Research Fellow at NARI in the Division of Social Gerontology. She is a social work and mental health professional with fifteen years of experience in the field of clinical social work, mental health and psychosocial research, teaching, supervision, sustainable development, and project management. Her areas of clinical and research interest include caregiving in dementia, family-based interventions in mental health, psychosocial interventions that can be delivered remotely and neuropalliative care. She was awarded her PhD in Psychiatric Social Work from the National Institute of Mental Health and Neurosciences (NIMHANS), India and she is currently working on the e-DiVA (empowering Dementia Carers with an iSupport Virtual Assistant) project, which aims to translate, and culturally and contextually adapt the WHO iSupport program to fit the health and social care systems of Australia, Indonesia, New Zealand and Vietnam.
Session Chair
Joanna Sun
Lecturer
University of Tasmania