Equity of access in rural and urban dementia diagnosis, management and care experiences
Tracks
Ballroom 1
Dementia
Diagnosis
Health Management
Informal caregivers
Thursday, November 14, 2024 |
2:45 PM - 3:00 PM |
Speaker
Ms Hannah Gulline
Research Assistant
Monash University
Equity of access in rural and urban dementia diagnosis, management and care experiences
Abstract
Introduction: Limited allocation of resources amongst geographically diverse individuals is an inherent root cause of health inequity. Maldistribution of health service resources between urban and rural areas is common, with highly populated areas prioritised over sparsely populated, geographically vast areas. As such, challenges impacting dementia diagnosis, management, and care in urban areas are even more acute in rural areas.
Aim: To examine equity of access to dementia diagnosis, management and care for people diagnosed with dementia and/or their significant others (partner/spouse, adult children, siblings, and friends) in the context of rural and urban Australia.
Methods: A descriptive qualitative study with semi-structured interviews conducted online using zoom. Interviews explored the signs and symptoms of dementia noticed, health professionals consulted, tests conducted, and challenges faced throughout the diagnosis process. Russell’s (2013) Dimensions of Access (availability, geography, affordability, accommodation, timeliness, acceptability, and awareness) guided analysis.
Results and conclusion: Thirty-seven people who had experienced the Australian dementia diagnosis process as a patient and/or significant other participated in the interviews. Disparity in access between urban and rural areas emerged in five dimensions: availability of healthcare and support services; geography impeding ability to access services; affordability of travel expenses; acceptability of available health professionals and services; and awareness of local services and resources. Accommodation and timeliness were challenges irrespective of location, with lengthy appointment wait times and difficulty navigating complex systems. Significant inequity exists across the rural-urban divide that must be prioritised in endeavours to promote equitable dementia diagnosis, management. and care throughout Australia.
Aim: To examine equity of access to dementia diagnosis, management and care for people diagnosed with dementia and/or their significant others (partner/spouse, adult children, siblings, and friends) in the context of rural and urban Australia.
Methods: A descriptive qualitative study with semi-structured interviews conducted online using zoom. Interviews explored the signs and symptoms of dementia noticed, health professionals consulted, tests conducted, and challenges faced throughout the diagnosis process. Russell’s (2013) Dimensions of Access (availability, geography, affordability, accommodation, timeliness, acceptability, and awareness) guided analysis.
Results and conclusion: Thirty-seven people who had experienced the Australian dementia diagnosis process as a patient and/or significant other participated in the interviews. Disparity in access between urban and rural areas emerged in five dimensions: availability of healthcare and support services; geography impeding ability to access services; affordability of travel expenses; acceptability of available health professionals and services; and awareness of local services and resources. Accommodation and timeliness were challenges irrespective of location, with lengthy appointment wait times and difficulty navigating complex systems. Significant inequity exists across the rural-urban divide that must be prioritised in endeavours to promote equitable dementia diagnosis, management. and care throughout Australia.
Biography
Hannah Gulline is a Research Assistant with the Health and Social Care Unit, Monash University. Her work is mostly qualitative with a focus on dementia, ageing and health service improvement. She has particular interest in equitable health systems and minimising the rural-urban divide.
She has completed a Bachelor of Biomedical Science from Monash University, Graduate Certificate in Project Management from RMIT and Master of Public Health from Monash University in 2022. She commenced a PhD on the implementation of the Centre for Research Excellence in Enhanced Dementia Diagnosis (CREEDD) program in 2024. Her research is a qualitative comparative case study that examines the implementation of the Enhanced Dementia Diagnosis program in the context of three Cognitive Dementia and Memory Services (CDAMS) clinics.
Session Chair
Kate-Ellen Elliott
Adjunct Senior Researcher & Training Projects Coordinator
University Of Tasmania & IP Australia