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Active Consent in Dementia, our voice to the future.

Tracks
Chancellor 6
Dementia
Education and Training
Elder Abuse
Enablement / Reablement
Future Directions
Human Rights
Informal caregivers
Innovation
LGBTQI+
Loneliness
Meaningful engagement
Mental Health
Models of Care
Physical Space
Quality improvement
Sexuality
Wellness / Well Being
Friday, November 15, 2024
11:00 AM - 11:15 AM

Speaker

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Mrs Theresa Flavin
Human Rights Advisor
Dementia Alliance International

Active Consent in Dementia, our voice to the future.

Abstract



many in the community consider the most painful part of dementia to be the loss of treasured memories, the truth is that the most painful aspect is fear of the future. Our current Age Care landscape has only one government funded pathway of support and care for advancing dementia which is institutionalisation.

SIRS data shows that violence including sexual assault is common within these settings. The likelihood of a person experiencing a reportable incident is 15-19% in any given year. Many of these violent and sexual assaults are considered to have had no harm to the victim.

many institutions implement policies that deny residents access to close relationships, often at the direction of substitute decision makers
older people are not protected from sexual assault, but they are often not permitted consensual and safe relationships either.

The threat of ‘institutionalisation’ is one of the most common levers in elder abuse. Women fear becoming a victim. Men fear becoming perpetrators, yet we are powerless to advocate for ourselves. Powerless to preserve the integrity of the ethics, morals and standards that we have lived our lives by.

I want to take an active role in preserving my dignity and safety into the future. I want to be supported to access my human rights and to meet my human responsibilities to others.
I do not want to be
Homogenised
Collateralised and
institutionalised
Instead, i ask for a robust mechanism where my wishes for my own future will be supported and respected. Advance Social Directive

Biography

Theresa Flavin is an activist and advocate for the human rights and dignity of people living with dementia and all older people. Theresa brought the voice of dementia to the United Nations in 2023, highlighting the need for an international convention on the human rights of older people. Theresa is working on a Phillipa Campbell Fellowship developing community led resources to support older people living with dementia manage sexual consent.

Session Chair

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Claire O'Connor
Senior Research Fellow
University of New South Wales

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